As many of you know I am adding other PTLS kiddos to the blog, this is such a wonderful thing and I know it is going to help so many more families in the future!
I don't know if many of you have noticed but I have recently changed the name from "Jamison and Potocki-Lupski Syndrome" to "Potocki-Lupski Syndrome: Our Journeys with PTLS" I'm not set on the name, in fact I'm trying to think of something more creative for it, I think I'll just need some ideas from all of you.. but the main point I wanted to address is that this blog is no longer Jamison's, it's all of ours and I wanted to reflect that in the title of the blog!
Please feel free to send me suggestions to help with the title, or let me know if this one works... just another way to show we care about all of you! Lots of Love, Shelly.
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