Easter Monsters!

Jamison had so much fun coloring Easter eggs for the first time this year! He went crazy with the dye and it went everywhere, but there was no stopping his fun! We made little Easter monsters and Jamison couldn't stop laughing at them!

The Results Are In...

Jamison has normal hearing for upto speech range. They still don't have the results back from the neurologist on the "high frequency" noises but seem to think that will be normal as well. Even if there was some loss within the high frequency range it would not be something that would require a hearing aid. YAY! Finally, a test Jamison totally passed with flying colors!! Now if we could just get this guy talking...

Love, Happiness and ESPECIALLY Laughter!!

Of all of the children I know, Jamison is the happiest. In fact, he ALWAYS has been. Sure, he has his moments of frustration... he wants something now and can't wait the 20 seconds it takes to open the box! It's rare, but he will pout... however, to know Jamison is to know that happiness is contagious. He is full of joy and I can't imagine a world without his smile.

I consider myself to be one of the luckiest parents alive. Sure, I have a different story than most... sometimes people think I'm a little overprotective (well, most of the time really) but I just do what is right for my little man. He's like no other and that's what makes Jamison's journey so special!

I don't have much to say about progress at this point. He's 4, he's being more vocal with imitating sounds, but really no words have stuck. We will be having a hearing test done on the 31st and I will let you know more when I have that information. I think he's fine, he just chooses to ignore us ;). (Sometimes I wish I could do that!) He's loving his new room and our new house. School is going great, and I will be updating with information on his programs here in the next week or so. I think it's important for other parents to read the types of stuff he's doing in school so they can compare to what their children are getting and their progress.

One thing I really wanted to get across with this particular post is that raising a child with Potocki-Lupski Syndrome is "different". That's really the only word I can use to describe it! Sure, other parents with "typical" children have a lot of things easy, but I like to focus on what's not so easy for them. I have been blessed in comparison to some of the parents with "typical" children that I know!! I rarely ever have to deal with tantrums like a lot of parents I know that do on a day to day basis. When I go shopping, Jamison is like a little "shopping angel!" I could shop for a week straight and never have a problem with him. AWESOME! He loves to go camping and fishing and boating... it's so much fun.

Look... if I spent my whole life upset about my son's diagnosis, I would never have time to enjoy all of the wonderful beauty he has brought into my world. This diagnosis was really hard for me to understand at first, but after you come to terms with it, you still get to hold that beautiful child of yours... you still get to see their eyes light up when you get them their favorite toy or movie. You still get to hear their beautiful laughter, and that I think is the most wonderful thing about being a parent of PTLS. I see beauty in things that are a little bit "different!"

If you ever need someone to talk with or support dealing with a diagnosis for your child or other family member give me a call... I love to help (208) 640-3542. It's funny, but I have talked with so many people that took months to contact me because they were afraid they would bother me. Honestly, if I didn't want to help, I never would have published this blog. It's for friends, family and to give help and hope to others!

If you need a visual of Jamison's happiness... check out this video :)

Can you say "Bike?"

Here is a video from Jamison's P.T today. This is the furthest he has ever gone on his bike. I'm so proud of my little man I just can't believe how far he's coming.

I guess it's been quite a bit since I've last updated my blog, and many exciting things have happened since... This week Jamison has SAID "No", "Go", "All Done" and Mama. That's right, SAID... but only once each and I can't seem to get him to do it again!! I'm going crazy, I just want him to spit it out! Hopefully the next time he does I'll capture a video of that to post.

Until then... enjoy this one.

Jamison's 4th Birthday & Halloween!

Jamison had a wonderful 4th Birthday! He had friends and family all come together to celebrate his big day. He didn't much enjoy the opening of the presents, just what was inside of them. Especially when it was a car! He received over 20 new cars to add to his collection, so as you can imagine, he found this to be a VERY good day!


He also had a great Halloween. He was a lion this year and had a blast running around in his costume. He went to visit family and friends around town to show off how cute he looked. Here are a couple pictures of my cute little lion!

Jamison loves to camp!

This year we got a new camper so that Jamison could enjoy going camping with us. He has is own big boy bed as well as all of his movies to make camping fun for our little guy. This year was his first time camping and he loved it! We went to Farragut State Park for a couple of nights and took him out for smores and hiking on the trails! Here are some pictures of him on his first camping adventure!

Itsey Bitsy Spider makes J-Man shout!

I hope you like this picture of Jamison taken a few days ago. This is Jamison's favorite spot on the playground. And I have to admit, he looks mighty cool in there too.

Jamison just loves to sing along to the "Itsey Bitsy Spider" song. Well... it's not really singing, just his version. He especially loves the "...wipes the spider out!" part. Jamison has been doing so great in school. He's getting potty time every day so I'm keeping my fingers crossed that he will start to understand the potty!

Jamison is just loving being outside and has started wearing his sunglasses this year. It's been a long time coming, but now he never wants to take them off, even when it's dark out!

His 4th birthday is coming up the end of October and I just can't believe the progress he's made in the last year. I never would have imagined that he would have picked up the signing as well as he has. Infact, just today his therapist and I were commenting on how precise he is about his signs once he learns them. I have so many hopes for Jamison being able to talk, I know it's got to be coming. And when he does I'm sure he has so many funny things bottled up in there he'll keep us laughing for years ;).

Keep an eye out for Jamison's Birthday/Halloween pictures!! ROAR - He's a lion this year!